Well what can I say, it's been a couple of months since finding the time to write.
I have spent many days in PMH, between ED, SDPU and many trips back and forth to Outpatients.
Mikaela's daily migraines were becoming more of a concern when she developed a high grade fever. Her head pounded 24/7, and her body became so weak that she could hardly walk. I literally had to get the wheelchair, to get her from the disabled bay in the front entrance of ED, and wheel her into the all too familiar department. Upon arrival, we were "greeted" at Triage, by the lovely nurse, Gary Collinson. He assessed and triaged Mikaela as a Category 2, so we were seen within 10 minutes.
After her weight and initial ob's were done, the Registrar sent her for an immediate CT. Unfortunately an MRI couldn't be done as they were fully booked, but one has been requested ASAP, as this shows the soft tissues of the brain, more accurately and clearly than a CT. They are better at showing the bony structures.
The CT was performed and it showed that Mikaela's tumour in the right lateral ventricle had grown since her previous MRI back in November 2008. Just what I didn't want to hear :o(((
As it stands, we are waiting to see Dr Peter Walsh and hopefully Dr Lakshmi Nagarajan, and they can assess the situation and decide what will happen next. In the meantime, Mikaela is living on 500mg tablets of Panadol every day, just to get her through. God help her liver though!!
Curtis has been relatively stable with his problematic airways. Not too many Priority one call-outs, thank goodness.
He was due to see Dr Andrew Wilson on the 7th December, but his secretary phoned me in the morning to say that Andrew couldn't be in clinic that day, as he was a victim himself of the terrible Gastro virus spreading throughout the community. I have just received a letter this week, saying that Curtie will see him on the 7th January, so I'm glad about that.
I'm sure another "Mr Wobbly Cheeks" will be in order, and we'll see how it goes this time. Last time his lung function test was poorly, due to his terrible episode of croup the previous night. I'm sure this one will be better!!!!!!
Jared has been a very, very brave little boy. His left ear has caused him so much grief since his terrible seizure resulting in him falling backward, smashing his head on the kitchen tiles. This happened 14 weeks ago, and still his ear continues to bleed and pus.
We went in for the 2nd lot of surgery yesterday, to repair his eardrum. The op went well and Jared was up and smiling again by 6pm last night, ready to go home. He had a good night sleep, probably the best in a while, so I'm glad that I got to keep my eyes closed for more than 2 hours, as it has been for most other nights!!!
He is as bright as a button this morning, so fingers crossed, all will be well from now on. Time will heal his skull fracture, so will just continue to keep a close eye on him and monitor his medication levels.
Apart from that, I had a lovely birthday, Pete and the kids got me a notebook, so I'm thrilled. Can do Facebook anywhere at anytime!!! Well, you know what I mean!!! hahahahaha
Well I'm heading off now, have lots to do, have just put Jared down for his morning nap, so it's time to get my bum off this chair and get things done!
Have a great day!
WIth love and heaps of cuddles, Lyndall, Mikaela, Curtis and Jared Light xxxxxx
Saturday, December 19, 2009
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